Luke Wygand was born 07/06/16, we spent 84 days in the Nicu at Joe Dimaggio Childrens hospital. After lots and lots of testing Luke was diagnosed with Nemaline Myopathy.
3 months later we spend another 40 days at the PICU, where Luke received a tracheotomy.
Our goal is to share our experience, inspire others while raising awareness for nemaline myopathy.
Here are some ways you can help:
- The goLukeWygand Foundation, learn more here.
- Paddling for Strength