Luke Wygand was born 07/06/16, we spent 84 days in the Nicu at Joe Dimaggio Childrens hospital. After lots and lots of testing Luke was diagnosed with Nemaline Myopathy.

3 months later we spend another 40 days at the PICU, where Luke received a tracheotomy.


Our goal is to share our experience, inspire others while raising awareness for nemaline myopathy.

Here are some ways you can help:


  • Paddling for Strength


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