The 365 push up challenge

The 365 push up challenge

Right before Luke was born I made this challenge, on the 1st year of Luke’s life I needed to increase 1 push up a day, until his birthday I would have to 365 push ups. In the beginning my goal was to create awareness to clean up the oceans. That is still one of my goals, but now I have a bigger purpose: nemaline myopathy.
Luke was born with nemaline myopathy,  it’s a mutation on the acta1 gene causing muscle weakness. Interesting enough the foundation that raise money for research it’s called building strength,  it fits perfectly with my challenge. Coincidence? I don’t think so, for me the law of the universe is clear, there are no coincidence.  The goal now is to create awareness to nemaline myopathy 1 extra push up a day!
I also started the #goLukeWygand wrist band campaign, where 50% of the sale goes to research, the rest cover cost and help young Luke Wygand, to order your wrist band click here.
There are more things coming up and more ideas, I belive the more research in genetics we have the better, so we can prevent many many things to happen, and find cure for many order disorders around the world.
Yesterday was the 85th day of the challenge, and I made a video because was the first time I was able to do it right next to Luke, since he is finally out of the hospital. Check it out here.
May the force be with you!!!
Much Love,
The Wygand family.

Live, Love, Laugh is medicine

All my life I tried to stay away from negativity,  and keeping up a good vibe, for example I don’t like watching the news because I feel is too negative and I belive they focus on fear. I always but always preferred comedy movies over dramatic movie and so on and so forth. I notice that we thrive on good vibes, and we try to focus only on the good.
With all that being said I always tried to laugh as much possible and make jokes on everything, literally everything. For example the day I found out that Luke needed to be transfered to Joe Dimaggio Children’s hospital was really scary but right of the bet I remembered my favorite Siendfied episode when Kramer talk about Joe Dimaggio (another coincidence), so I put the scene on YouTube (click here for video) to take a break in my mind.
Whe. Luke was born, life became crazy, but in my mind I was always thinking, I need to keep laughing, and I notice that everytime I laugh things got easier to mange, the pressure and stress felt lighter. The interesting thing is that kids normally feels a lot, they feel our energy and everything is energy, I made a decision to everytime I’m near Luke I want to be laughing and on a good vibe so he can feel that I’m not worried, is not that  easy but is possible.
As we learn about Luke condition, nemaline myopathy,  we are finding out that how well he improves has a lot to do with his environment. Basically good support, physical therapy,  etc can make a huge difference in his life. Loving him, stimulating him, exercising  (not to the point of exhaustion), and laugh with him, all this is not only good for him but is medicine, especially because the first months on nemaline myopathy are crucial.
So live, love and laugh to your fullest because is medicine and always look at the bright side of life.


Beginning of something big?

So I have been writing in my other blog, but I have a few ideas going on in my mind therefore I started this blog. Luke is my biggest inspiration and with all that the love and support that we are receiving from the community and friends is absolutely amazing, leaving us speechless, and giving me a bunch of ideas.

The road of the future is unknown, we just received a diagnosis of what Luke have, and looks like his improvement depends a lot on the environment that he lives in. We know that is a nemaline myopathy, this is a rare mutation in the acta1 gene.

As you all may already know Carol and I we are endurance athletes for years and I have been coaching for over 10 years. Carol (she does not like me to say this) but she have done triathlons since 12 years old with major accomplishment such as state champion in Brasil, and I have done 18 ironmans with some good results including winning Hits Triathlon Naples full distance, therefore what better environment a kid like Luke with muscle issues could be in? Weird right? I really do believe we choose our parents before we come to this planet. Want to create a better picture? We were suppose to go home on friday the 9/9/16, since Luke was breathing with no support, but because he got tired he needed to go back to a little support breathing. Yes, he needs to build a bit of strength and endurance, isn’t that a big coincidence?

This post is see where we stand at and I will be posting more as we go.